So let me just catch up, we haven't had therapy since last Wednesday. The therapist was sick on Thursday, Friday is our scheduled day off, Monday she had a funeral, Tuesday she was sick. I haven't heard whether or not we will be having therapy today.
Yesterday Mr N had his speech evaluation to see if he qualifies for speech therapy, again, I'm not sure why this whole process is so tedious and repetitive, he had an eval in February that indicated he was significantly delayed. Anyway, yesterday he scored 12 months receptive language, and 15 months verbal. It's hard to describe the emotions involved with each of these evaluations. Sometimes I get angry, why hasn't he been receiving services for speech the last 6 months? When he was 15 months old he had his first speech evaluation because we noticed he was losing words and seemed to be delayed. He was at 16-18 months for verbal and receptive speech. It is so frustrating and incredibly sad to know that 15 months ago he was more advanced verbally than he is now. Sadly, at 15 months he had already started regressing and losing words which is what prompted that speech evaluation.
I know he has progressed tremendously since his speech evaluation in February, but I really thought he would score much higher yesterday, I was hoping for 18-20 months. It's discouraging to know that with each evaluation he is getting further and further behind. When he had his evaluation in February, I remember thinking what a relief that he wasn't even a full year behind, we should be able to get him up to speed in no time. He is now a year and a half behind. Now what???? Gaaaaaaaaaaaaaaaaaaaaaah!!!!
The speech pathologist yesterday said that the same evaluation system isn't used by everyone, so that could be why he is scoring lower now than he did in February, even though he's progressed so much since then. I guess that should be good news, or reassuring or something. But it's not. If the evaluation she did is accurate, then he's still considerably more delayed than I realized.
One of the things she mentioned is muscle tone, which could be the reason why his speech isn't very clear most of the time. I'm hoping there is something that can be done to improve that, I'm under the impression that the occupation therapist will be addressing that. We still haven't heard anything from her and when that evaluation will be. Did I mention how incredibly maddening it is to be still trying to get evaluations and therapies that he so desperately needs all these months later? He needs help, he needs it now, just think of how much easier life would be for him if he had everything he needed at his disposal! Yes I'm one frustrated momma just trying to be patient in this very slow process.
Onto the rest of our life, we've been working on the house in all of our spare time, trying to get some unfinished projects done before my family arrives on Saturday. Yesterday we had the carpets and couch cleaned, they look much better. (White carpet & toddlers....yup, now you get it). Last weekend we got the toilet set in the bathroom, bought a sink, put up the wainscoting, now to get the sink plumbed...not quite as easy as normal since the bathroom was apparently an afterthought so the drain pipe isn't coming out of the correct wall. We also got E's room and ceiling painted, along with her bed frame. Monday we picked up some curtains and installed those that night, the kids picked out sheets for their beds, we are close to getting her room done.
This morning I gave Mr N a much needed haircut, one of his least favorite things in the world. He cries the entire time and through his entire shower afterward. I cut it quite short so that he can go two months or so without one, but even every two months is too often for him.
I am off to put all the furniture back since the carpets are now dry, in case we have therapy today.
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