It's not my thing. I am not good at it, I do not like it. I want it and I want it now. Okay okay, I'm not that impatient but when waiting is producing negative results, then my patience grows thinner each day. As my wise mother texted me "have a drink and trust in God", so wise that one.
I get that suggesting patience is supposed to be encouraging and supportive but it is so hard to be patient when each day without services for Mr N is one day further delayed. How can I be patient when my baby is falling further and further behind one day at a time?
He qualified for speech therapy a year ago, but that never happened. Even if he only progressed by 6 months in the last year that would be 6 months further than he is now. But nope, instead he is 2 years delayed at this point. How much further do we let him fall behind before we do something drastic? I can't take this!
I got a call from the school today that they can squeeze an IEP in on the 27th at 1:30 for Mr N. Of course, we aren't able to make that time/date work and they didn't call back before the end of he day. So next week I'm sure they will try to reschedule for the following week. There is three months of school left, once again I get the feeling they are trying to procrastinate long enough that they don't have to do anything for this year. Saves the school money not having an extra kiddo to provide services for this year. I mean the regional center successfully avoided providing speech therapy for an entire year so they could push it off on the school. I'm starting to understand why so many parents have to literally sue the school district to get services for their child.
What the hello kitty is wrong with these programs that they don't realize that the more money and services they provide at a younger age the less programs they will need to fund later? Isn't that the point of early intervention? It is the key to success. If you have a 2 year old that is 6 months delayed, then getting the right services and he/she will be on track by the time they are 4 or 5. But they seem to think it is better to deny services and only provide the minimum so that by the time they are 4 or 5 they are so severely delayed that they will require additional services all the way through grade school and into junior high. And really if they aren't on track by junior high, there can't be much hope that they will be on track for high school and will continue to need additional help. There is little surprise that there are so many programs for adult services when the early intervention programs are so severely lacking. Do they not see the correlation?
In case you haven't figured it out, I've lost my patience, I'm pissed off and ready to rumble. Douchebag McGee should be glad he didn't return my call today, because I probably would have unloaded on him.
Friday, February 22, 2013
Saturday, February 9, 2013
IEP Cancelled
Yesterday we had an IEP scheduled for 10:30am, which was cancelled promptly at 10:17am. They like to give plenty of advance warning when there is a cancellation so you don't completely rearrange your schedule to accommodate the request. [That is what we call sarcasm.]
During the cancellation phone call, the school psychologist said that he would like Mr N to start receiving in home services until the program at the local school is set up. The agency should be calling me to set up the services with a start date of February 19. Based on previous experience with the company, I will expect our first phone call on the 19th and services scheduled to begin in March. I'm not trying to be a Debbie Downer, but reality is easier to accept than blind optimism with nothing to base it on.
If you ever have checked out autismspeaks.org and looked through the list of best/worst places to live if you have a child with Autism, you'll see California high on the list of worst places. This does not come as a surprise to me. Undertrained people providing partial services with large gaps of service does not bode well for their reputation. I happily expressed my dissatisfaction on the lengthy survey they requested we complete.
Potty training is still underway. I'm pretty sure that I'll be receiving a gold star later today signifying my great accomplishments. Four days of diaper free living, and I haven't given up. That is gold star worthy by all accounts. But seriously, he's doing great, aside from a few accidents. He requests to use the potty and has even worn his undies.
Since I'm sure my post won't show the exact time I posted, I'll go ahead and tell you, it is 5:37am right now. The sun is not up at all, it's quite dark actually. I guess my body has given up on sleeping, even though the contract states that the sleeping schedule can not be changed, altered or in any way adjusted without my written, notarized consent. I did not consent to waking up at 3:00am.
Please note, my lack of sleep explanation was to excuse away the mindless ramblings above and below. Oh did you think I was going to stop typing now?
Thursday we went to Sonora for our weekly grocery shopping (we gave up on the monthly shopping in Modesto as it was so exhausting no one likes Modesto). On our way we met up with Katee to return the toys and such that were left at our house when therapy ended the beginning of December. Mr N was happy to see her and insisted on getting out of the car to say hello. Our shopping trip was quite uneventful, we returned home and had lunch then the kids started playing. That ended abruptly when E mashed her face into the wall resulting in a busted lip and lacerated gums above her two top right teeth. We quickly loaded back up and headed back to Sonora to the dentist for an emergency exam. Her gums looked pretty rough and I couldn't tell how bad her teeth were injured. E did great, she had a couple of x-rays done, then an exam by the dentist. She was brave and not scared at all, I was quite relieved. Daddy met us there to assist since doctor's offices are typically meltdown city. But Mr N fell asleep on our way there and slept the entire time.
While at the dentist office we scheduled regular checkups for the kids for a couple of weeks later. It's a super kid friendly dentist office, so I'm hoping that Mr N can relax and get examined.
During the cancellation phone call, the school psychologist said that he would like Mr N to start receiving in home services until the program at the local school is set up. The agency should be calling me to set up the services with a start date of February 19. Based on previous experience with the company, I will expect our first phone call on the 19th and services scheduled to begin in March. I'm not trying to be a Debbie Downer, but reality is easier to accept than blind optimism with nothing to base it on.
If you ever have checked out autismspeaks.org and looked through the list of best/worst places to live if you have a child with Autism, you'll see California high on the list of worst places. This does not come as a surprise to me. Undertrained people providing partial services with large gaps of service does not bode well for their reputation. I happily expressed my dissatisfaction on the lengthy survey they requested we complete.
Potty training is still underway. I'm pretty sure that I'll be receiving a gold star later today signifying my great accomplishments. Four days of diaper free living, and I haven't given up. That is gold star worthy by all accounts. But seriously, he's doing great, aside from a few accidents. He requests to use the potty and has even worn his undies.
Since I'm sure my post won't show the exact time I posted, I'll go ahead and tell you, it is 5:37am right now. The sun is not up at all, it's quite dark actually. I guess my body has given up on sleeping, even though the contract states that the sleeping schedule can not be changed, altered or in any way adjusted without my written, notarized consent. I did not consent to waking up at 3:00am.
Please note, my lack of sleep explanation was to excuse away the mindless ramblings above and below. Oh did you think I was going to stop typing now?
Thursday we went to Sonora for our weekly grocery shopping (we gave up on the monthly shopping in Modesto as it was so exhausting no one likes Modesto). On our way we met up with Katee to return the toys and such that were left at our house when therapy ended the beginning of December. Mr N was happy to see her and insisted on getting out of the car to say hello. Our shopping trip was quite uneventful, we returned home and had lunch then the kids started playing. That ended abruptly when E mashed her face into the wall resulting in a busted lip and lacerated gums above her two top right teeth. We quickly loaded back up and headed back to Sonora to the dentist for an emergency exam. Her gums looked pretty rough and I couldn't tell how bad her teeth were injured. E did great, she had a couple of x-rays done, then an exam by the dentist. She was brave and not scared at all, I was quite relieved. Daddy met us there to assist since doctor's offices are typically meltdown city. But Mr N fell asleep on our way there and slept the entire time.
While at the dentist office we scheduled regular checkups for the kids for a couple of weeks later. It's a super kid friendly dentist office, so I'm hoping that Mr N can relax and get examined.
Wednesday, February 6, 2013
Potty Training
I hate it. It's messy and frustrating and I'd like to avoid it for as long as possible. Mr N apparently has other plans. Yesterday morning he took off his diaper and refused to put it back on. So every hour or so I put him on the potty, until I got busy and distracted. He did have one accident, but he also told me "potty" one time when he needed to go, and another time he pointed to his butt when he needed to poop. Not too bad for day one.
He stayed dry through the night and slept without a diaper. He did have 2 accidents today when we were outside and there was a lot of distractions, we had the carpet cleaned today and some trash hauled off, so I wasn't paying enough attention to the time. Twice today he has indicated that he needed to go potty once by saying "pee", the other times I asked him and sat him on the potty.
So far I would say he is doing quite well with this whole potty training thing. The only problem so far is that he refuses to wear underwear, I think the elastic is bothersome so I'm going to be hunting for some less irritating boxer briefs or something more comfortable. Until then, he can go commando, all the cool kids are doing it.
Meeting went off without a hitch, he went sans diaper and there were no accidents.
He stayed dry through the night and slept without a diaper. He did have 2 accidents today when we were outside and there was a lot of distractions, we had the carpet cleaned today and some trash hauled off, so I wasn't paying enough attention to the time. Twice today he has indicated that he needed to go potty once by saying "pee", the other times I asked him and sat him on the potty.
So far I would say he is doing quite well with this whole potty training thing. The only problem so far is that he refuses to wear underwear, I think the elastic is bothersome so I'm going to be hunting for some less irritating boxer briefs or something more comfortable. Until then, he can go commando, all the cool kids are doing it.
Meeting went off without a hitch, he went sans diaper and there were no accidents.
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